Health And Wellbeing Information and Support

lwbc#20 health and wellbeing graphic CHFT.jpgEvery person with cancer should have access to health and wellbeing information and support, as part of the Personalised Care Interventions, by 2020. The main aims are to support patients, families and carers  through the provision of information and advice relating to health and wellbeing; to signpost those attending to local resources and services including local and national charities, both clinical and non-clinical; to facilitate interaction with other people affected by cancer, and to support self-management.

Various models of delivering health and wellbeing support for people affected by cancer exist, including the offer of either health and wellbeing events or clinics, or generic health and wellbeing support.

Graphic, left, courtesy of Deehan Mair, Calderdale and Huddersfield NHS Foundation Trust

Macmillan defines a ‘Health and Wellbeing Event’ as follows:A Health and  Wellbeing Event is a service model that takes the form of a supportive event to help prepare people affected by cancer, their carers, and their family and friends for the transition through their cancer journey. The event brings together a range of service providers from health, social, community and voluntary sectors.’

NHS England states:"Health and Wellbeing Information and Support includes the provision of accessible information about emotional support, coping with side effects, financial advice, getting back to work and making healthy lifestyle choices. This support will be available before, during and after cancer treatment."

LWBC#21 Thought Catalog.jpg These education and support events can be generic or specific to tumour   groups and can take different formats, including presentations or a market   place style arrangement.

 A different model is to offer health and wellbeing support, rather than   specific events. This means that patients can be referred onto a specific   organisation e.g. Cancer Support Yorkshire/a Macmillan Information and   Support Centre for wellbeing support.

 This organisation can then listen to a patient/carer’s needs and concerns,   then refer or signpost them to organisations in the community who may be able to offer holistic support e.g. money worries/relationship concerns/physical activity programmes/mindfulness and relaxation courses.

Man running courtesy World Obesity Federation.jpg All places across the Alliance are offering either health and     wellbeing events or support, and some are offering both. A number   of the acute trusts, along with local councils and charities, are also   looking into the offer of prehabilitation and rehabilitation services for   patients. This offer will include specialised information and support   to increase physical activity prior to and after treatment and surgery,   as well as specialised nutritional advice and cessation services.

Useful Information

Health & Wellbeing Events: How To Guide, Macmillan Cancer Support

Health & Wellbeing Clinics and Events: Sharing Good Practice, Macmillan Cancer Support                                                    Picture, above, courtesy of World Obesity Federation

Macmillan SafeFit - free remote service for anyone in the UK with suspicion of or confirmed diagnosis of cancer. Referral to a cancer exercise specialist who can help during Covid-19.

Cancer Care Map - find cancer services in your local area

Case Study: Using The HWBIS Checklist As A Quality Improvement Tool in Harrogate

Caroline Summers.jpgIn 2019 a draft self-assessment checklist was co-produced by the NHS England National Cancer Team and Cancer Alliances, along with Alliance partners, patient and public voices representation. The checklist was subsequently piloted by three Cancer Alliances, including West Yorkshire and Harrogate.

As part of local collaborative cross-organisation work on health and wellbeing, the WYH Cancer Alliance carried out the pilot in collaboration with the Lead Cancer Nurse at Harrogate District Hospital, across four tumour specialities. 

Caroline Summers, Macmillan Living With and Beyond Cancer Implementation Project Manager with the WYH Cancer Alliance, pictured right, shares a vignette about how the checklist has been used as a Quality Improvement Tool, and plans for the next stage of development. More information can be found here.

Case Study: Using The HWBIS Checklist For Stock Take and Quality Analysis In Leeds

Abby Green.pngAbby Green, Macmillan Living With and Beyond Cancer Implementation Project Manager with the WYH Cancer Alliance, pictured right, shares a vignette about how the checklist has been used in Leeds.

More information here

Prehabilitation and Rehabilitation

Recent studies have shown that prehabilitation and rehabilitation can be very important for cancer patients. Read more here                                                                        

                      Prehabilitation infographic.jpg